From age two I was extra sweet
When almost five I DKA’d in a hospital suite
At ten I was afraid to go to a friend
At twenty I began the cyborg trend
At thirty I married and a future I saw
At fourty I got Gastro, Nuero and even more
A CGMS to measure glucose, every five
And it spoke to the pump, but the data was dry
But now at fifty I’m ready to go
Another ten or twenty or thirty or so
At Fifty Two my first wife left the world to one better
Another year later and I’m remarried and together
We’re working on bringing long term health easily
Utilizing all the equipment together, happily
The data from each should be utilized to provide
A simple to follow glucose and living guide
I thought that I would never see
Myself rewarded for hitting fifty
For I thought by now that diabetes would be
Something controlled and worry free!
From syringes glass that we sterilized
To an insulin pump delivering wise
From urine testing with five drops or two
To a glucose sensor every five minutes true
From glycogen my childhood friend
Thinking uncontrolled hypo would never end
To replacing the Glyco once a year
Due to glycemic unawareness and childhood fear
From U40-R and L and N
Calculating shots with unspent insulin
To pumping only genetically spliced Insulin
with faster action and tail sliced
Now working on a game, Insulinopoly
And helping to achieve good blood sugars technilogically
To help type 1 diabetics to get a good A1C
Without having to give up their life completely
So to all newbies and tens and twenties or more
I doubt I will see you hit the floor
Or have troubles with eyes or neuropathic pain galore
Just follow the rules and you will endure
What is the weirdest question you’ve been asked about your diabetes, and how did you respond?
Not how old you are, how many years of diabetes have you lived through (a doctor in a local hospital who told me it was impossible to be diabetic for over 50 years and still have ability to see, be able to walk and have working kidneys).
I replied that I agreed with him and always felt my parents hated me – they just liked to give me syringes when I was growing up (since age two) since they really liked my crying and not letting me eat like everyone else.
I asked him to be a witness when I took my mom to court for torturing me as a child and asked him if he would call my mom and tell her it was wrong to like to me!
Has anyone told you that you couldn’t do something due to your diabetes, and you proved them wrong?
My aunt said I should never get married because I wouldn’t be able to have children. I guess my son and daughter WERE delivered by the stork 🙂
I had been told that I wouldn’t be able to hold down a job long term (10 years at Burroughs/Unisys followed by another 10 years at Information Builders, plus a number of jobs from 1.3 years and working as consultant from home last few years.
How do you inspire others?
I have written two books for children with type 1 diabetes using stuffed animals and Dr. Seuss type rhymes
I have worked on diabetes tech since started on insulin pump over 36 years ago – developed first Teflon infusion set when I was told I had to quit since I was allergic to nickel. I’ve worked on pump and cgm technology and contributed to both feature set, software, pump user interface design and user manual contents.
Would you rather fight one horse sized duck or 100 regular sized ducks?
Rather not fight them – have them as dinner guests (one evening at a time) 🙂