I was in 6th grade, 11 years old when I got a cold and developed what we now know to be the classic symptoms of T1D. I was “treated” at Children’s National Medical Center for a week. We, my parents and I, received intense nutritional training, psychology advice and medical guidance. It was well before pumps so it began with injections and there it started. A decade later I am graduating from college and now on multiple injections, another decade and now married and considering having a family and now on a pump. I have truly been blessed in my life with wonderful parents who took on MY diagnosis and made it their own. I’ve had a wonderful group of friends who have supported me through MY diagnosis and learned as much as they could about T1D. Years later my loving husband who made MY diagnosis his own. Now our son who knows no different has taken MY diagnosis and will too carry my diagnosis throughout his life. T1D doesn’t just affect one person, it affects the families, friends, spouses and children of for a lifetime! T1Ds grow into adults and go on to live our lives.
What would a world without T1D be for MY family, because it’s no longer about just me? One word. . . Freedom! The freedom from medical devices, tubes, needles and lancets. Freedom from the carb counting, the need for a mathematics degree to convert the ratios just to eat a simple meal. Freedom from planning and scheduling every facet of your life, lunch, meetings and carpools. Freedom from pump alarms, CG alarms, reminder alarms. Freedom from the fear of will this be the day I develop complications despite my hard work. Freedom from the roller coaster ride of sugars! Freedom from the misconceptions of so many about our daily living and struggle. Freedom from the insurance company hurdles just to get the medication we need to survive. Finally the freedom that we will not have to explain to our children and our grandchildren what T1D is but rather the freedom to say it is finally Type None!
Has anyone told you that you couldn’t do something due to your diabetes, and you proved them wrong?
Yes. My senior year of high school I had a “friend” tell me that I would never have a normal life. I think I’ve exceeded in my life in being “normal”.
How do you inspire others?
I cook for my family and have made it my mission to help my husband improve his quality of life through food, and now am raising my son in good and positive nutrition.